Weekend fun...

So people that have kids who are typical (meaning they develop every skill on time or pretty near to it) don't always understand how something so small like "I heard him say..." can really mean to us! Caleb hasn't been formally diagnosed with Apraxia but we continue to hear from his private speech therapist at the Children's Institute how he's looking like he's more Apraxic all the time. So yesterday we're at a picnic at Matt's cousin's house with a number of people we've never met. The one woman knew Matt's aunt and uncle fairly well and just kept saying how well behaved Caleb was and how adorable he is, bla bla bla all that other stuff that most parents love to hear (not that I don't - it's just way under rated when there are other things). I forget what Caleb said and I answered and I just kind of got this look when he did a sign and then I went into my Apraxia talk. She was shocked and just said how clear he seemed, etc... If people could only understand just how important that stuff is in comparison to how well behaved he was just for that second!

Bye Bye Choo Choo...

Who knew those 4 little words put together would be so exciting!? I know these things seem so small to many, but Caleb has had to work harder than so many kiddo's to be able to say that! It's amazing to hear the 2 word phrases he's finally putting out there for all of us to hear and know what's going on in that mind of his.

On a totally different note, today was Caleb's 3rd birthday party! Totally fun. Colleen and Gretchen - my two friends from college (who were also there when Caleb was born) came to the party and spent some time with us! I forget how much I have gotten caught up in my own life. I really need to get out of my bubble and do more!

He's not a baby...

So that's right.. I'm a little depressed for the fact that my baby isn't a baby anymore! He's 3! Where did time go? Did it fly past me without ever seeing it?

He looks so tall in these pictures and far too grown up to be the little boy we had last year at this time who had no words and no opinion. Might I add he's become VERY opinionated these days! When did that happen? *lol* Uncle Joe and Uncle Marc teaching him to say "pshht" to blow people off really just makes him sound like a bratty teenager which though endearing now, I'm sure I'll hate in about 12 years!

Who knew...

that hearing "He's saying so many words!" could mean so much!? While talking on the phone, Caleb always wants in on the action so of course he has to say "hi" to whoever I'm talking to. Amy has no idea how much she made my day by saying 5 little words! Thanks Amy!

2010 Walkathon for Children with Apraxia - Benefitting CASANA Programs and Research - Apraxia-KIDS

2009 Walkathon for Children with Apraxia - Benefitting CASANA Programs and Research - Apraxia-KIDS

2010 is set up for our area!

Apraxia of Speech

So, our journey has begun. First, if I have to explain what it is, here is the best place to do it!

Apraxia of speech is a speech disorder in which a person has trouble saying what he or she wants to say correctly and consistently. It is not due to weakness or paralysis of the speech muscles (the muscles of the face, tongue, and lips). The severity of apraxia of speech can range from mild to severe.

Developmental apraxia of speech (DAS) occurs in children and is present from birth. It appears to affect more boys than girls. This speech disorder goes by several other names, including developmental verbal apraxia, developmental verbal dyspraxia, articulatory apraxia, and childhood apraxia of speech. DAS is different from what is known as a developmental delay of speech, in which a child follows the "typical" path of speech development but does so more slowly than normal.

The cause or causes of DAS are not yet known. Some scientists believe that DAS is a disorder related to a child's overall language development. Others believe it is a neurological disorder that affects the brain's ability to send the proper signals to move the muscles involved in speech. However, brain imaging and other studies have not found evidence of specific brain lesions or differences in brain structure in children with DAS. Children with DAS often have family members who have a history of communication disorders or learning disabilities.


Children with developmental apraxia of speech generally can understand language much better than they are able to use language to express themselves. Some children with the disorder may also have other problems. These can include other speech problems, such as dysarthria; language problems such as poor vocabulary, incorrect grammar, and difficulty in clearly organizing spoken information; problems with reading, writing, spelling, or math; coordination or "motor-skill" problems; and chewing and swallowing difficulties.
The severity of both acquired and developmental apraxia of speech varies from person to person. Apraxia can be so mild that a person has trouble with very few speech sounds or only has occasional problems pronouncing words with many syllables.


Children with developmental apraxia of speech will not outgrow the problem on their own. Speech-language therapy is often helpful for these children and for people with acquired apraxia who do not spontaneously recover all of their speech abilities.

Speech-language pathologists use different approaches to treat apraxia of speech, and no single approach has been proven to be the most effective. Therapy is tailored to the individual and is designed to treat other speech or language problems that may occur together with apraxia. Each person responds differently to therapy, and some people will make more progress than others. People with apraxia of speech usually need frequent and intensive one-on-one therapy. Support and encouragement from family members and friends are also important.

Researchers are searching for the causes of developmental apraxia of speech, including the possible role of abnormalities in the brain or other parts of the nervous system. They are also looking for genetic factors that may play a role in DAS. Other research on DAS is aimed at identifying more specific criteria and new techniques that can be used to diagnose the disorder and distinguish it from other communication disorders.

http://www.nidcd.nih.gov/health/voice/apraxia.htm

Okay, now that it's out of the way, here's the deal. Caleb had a SLP evaluation done on 12/16/09 and because of his age and possible issues of frustration getting in the way for no diagnosis, it has been determined as "probable apraxia".. So what do we have to do? Treat it like apraxia and push for lots of speech and hope and pray that medical assistance loophole will pick us up and help us with paying for it!

What we do to work with him at home is kind of all over the place. Dinner and tubby time are not play anymore, but instead work time for Caleb and he's also taking fish oil capsules (cut open ~ yes, they're odorless ~ and squeezed into his mouth). We try to do as much as he can handle and I believe everyone else does their best too. We have a few words now and he's actually saying "bye" without whispering which is huge!

So for now, we shall see. We do our best.